I would like to share that on Tuesday, June 29th, Medpedia announced RareSpace, an online knowledge sharing platform for rare childhood diseases, which affect 22.5 million American families. Designed in partnership with the R.A.R.E. Project and the Children’s Rare Disease Network, RareSpace provides a platform to advance research and share information on these diseases. Parents, physicians, researchers, advocates and others interested in rare diseases are encouraged to participate in discussions and share information about genetic diseases, innovations in research, and standards of care. Medical professionals in RareSpace will answer questions about treatment, best practices, and how to best help these children and their families. Anyone with an interest in rare diseases is invited to join at http://www.medpedia.com/communities/274-RareSpace .
Create a mindful journey of life with practice, giving and be able to say a 'no' when it matters!